I have some good news to report. Lily is feeling better. A lot better. One of the therapies the doctor wanted to try seems to be helping. She's sleeping better, too, and that is phenomenal. It feels so wonderful to watch her have more normal, pain-free days. It gives us great hope that 2012 will be a little easier than 2011. The doctors have warned us, though, that at times she can regress health-wise, but for now we'll take the improvement.
She's so brave!